Wow. I just came across the most amazing blog written by Janis, Austin's mum. Austin, now two years old, was born a little early--36 weeks--and was diagnosed with Branchio-Oto-Renal (Melnick-Fraser) syndrome and deals with microtia, hemifacial microsomia, and hearing impairment, like Ryan, and also GERD, dysphagia, chronic lung disease, obstructive sleep apnea and macrocephaly.
Now, lemme tell you, this mum rocks. Her attitude is spot on. Come on, she has a tag called "People Who Get It"! I love this girl. I mean, it's hard for me to pick just one at this point, but this has got to be the best blog post of all time. Janis: I can relate! Hug, kiss, kiss, hug (um, is that weird?? Oh, I don't even care..baaaa).
Also, filed under the alternative "People Who Don't Get It" (again, love), I found a freakishly comforting and familiar post that pretty much explains what I am going through right now, as we embark on our lovely little dance with doctors and insurance providers. Yup, welcome to our world, eh? A world made a little more special by the our babes who just needs a little somethin' extra, like Austin and Ryan.
So, a huge good luck to you, Janis. I look forward to sneaking a peak more often.
Oh, yeah, everyone, PS: Vote for Janis and her blog in the 2nd Annual People's HealthBlogger Awards. She's currently ranked 10th and competition closes December 15th!
16
5 years ago
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